To support better diagnosis and treatment, the European Commission is launching a new online knowledge-sharing platform for more than 30 million Europeans living with rare diseases.
Rare diseases can affect individuals from birth, like cystic fibrosis, or it can develop later in life, like Huntington’s disease. Regardless of the large total numbers of those affected in Europe, an effective knowledge-sharing platform is not currently available and information on effective diagnosis and treatment strategies are not collected in a uniform way and are often not shared among registries or across countries. As a consequence, patients more than often suffer alone with little or no hope of being cured, but the European Commission is looking to change this.
To read more about this go to: https://www.healtheuropa.eu/european-commission-knowledge-sharing-platform-rare-diseases/90565/