One-year anniversary of the European Reference Networks for rare diseases
A report by Vytenis Andriukaitis, European Commissioner for Health and Food Safety: Elisa from Alessandria in Italy suffers from osteogenesis imperfecta. This rare genetic disease causes brittle bones and affects only one in 15 000 people. Elisa, aged 30, was diagnosed with the disease as a small child. “I couldn’t play like other children” she recalled, […]
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