European Reference Networks (ERNs) connect health care providers and centres of expertise to improve access to diagnosis, treatment and the provision of high-quality healthcare for patients with conditions requiring a particular concentration of resources or expertise no matter where they are in Europe.
For clinicians who network widely already, the ERN will represent the formalisation of their networking structures/practices in highly specialized healthcare. For those without specialist networking communities at present, ERNs will promote expertise and support health care providers in order to bring local, regional and national provision of healthcare closer to the patients.
For more information about European Reference Networks on the ec.europa.eu website
Patient registries, which were designed for patients with shared characteristics, have been an important source of the data needed to assess clinical performance, provide health technology assessment or assess policy implications on a local, regional, national and in some cases international level. As a result, hundreds of registries have been set up, ranging from paper based spread-sheets in a physician’s office to international rare disease initiatives coupling clinical and genetic data as well as bio-banks.
In the last fifteen years information technology has enabled clinicians to collect, share, compare and analyse large amounts of patient data.
A recent EU-funded project has produced a set of Guidelines to provide practical advice on how to set up and manage patient registries as well as to enable secondary use of data for public health policy and research. These Guidelines should make life easier for those setting up new registries or redesigning already functioning registries and those exchanging data across registries.
To read the full 232 page Guidelines
on the ec.europa.eu website
The Joint Action to support the eHealth Network (JAseHN) was launched in 2015 and is now in the process of setting up a cross-border network to exchange Patient Summaries and ePrescriptions, by focusing on the following objectives:
- enable seamless cross-border care and secure access to patient health information between European healthcare systems, particularly with respect to the exchange of Patient Summary and ePrescription.
- contribute to patient safety by reducing the frequency of medical errors and by providing quick access to patient health information, as well as by increasing the accessibility of a patient’s own prescriptions, also when abroad.
- provide medical personnel with life-saving information in emergency situations and reduce the repetition of diagnostic procedures.
To read more about JAseHN and download their leaflet from the jasehn.eu website
A new portal has been launched for the European Innovation Partnership on Active and Healthy Ageing (EIP on AHA).
The partnership is active in the context of the EU Innovation Union to gather key stakeholders from the public and private sectors including end users, public authorities, industry, and researchers to work together towards innovative solutions that meet the needs of ageing population. In this sense, the portal aims to act as a communication and information hub to meet and exchange ideas with peers, to get information about funding opportunities or EIP on AHA Action Groups, and to look for potential partners on innovative AHA projects.
Various tools have been (and will be) developed to enhance the current planning processes.
To find out more about EIP on AHA, on the ec.europa.eu website
Imagine if the best specialists from across Europe could join their efforts to tackle complex or rare medical conditions that require highly specialised healthcare
and a concentration of knowledge and resources. That’s the purpose of the European Reference Networks.
Interest in becoming part of a Network can be registered from the 16 March 2016 and an “info day” regarding this call will be organised on 7 April 2016.
The call for ERNs will be in two waves:
1. ERN applicants wishing both to apply to become an ERN, and to apply for funding, should submit their application during the first period of the call (from 16 March 2016);
2. ERN applicants wishing to apply only to become an ERN, but not for funding, should submit their application during the second period of the call (opening in June 2016).
2009 – 2010 This project focused on establishing a cross border Association of Public Health and Social Medicine with colleagues in Kent and Medway and the Somme in France. The cross border Association shared and compared ways of addressing health threats/ challenges, perceptions, community practices and responses to specific health issues – especially in the prevention of long term illnesses and in areas of social exclusion – in children and adults and will also enhance the professional development of participants.
To establish a cross border Association of Public Health and Social Medicine:
- To improve our mutual understanding of approaches to health, healthcare and the prevention of ill health in the cross border region.
- To exchange ideas and experiences with a focus on health inequalities and social exclusion
- Develop terms of reference for the Association
- Map areas of common practice
- Identify areas of good practice
- Explore innovations in practice using common public health data
- Develop shared practice in enhancing the public health roles of clinical and other professionals, for example, pharmacists
- Explore and compare policies.
2005 – 2007 Bien-être was a cross border two-year healthy schools and communities project between a multi-agency partnership in Kent and Pas-de-Calais, France which started in September 2005.
The objectives of Bien-être were to create cross-border and local learning networks – comprising of those involved with the health and education of children and the well-being of communities – in order to learn from different cultures; to foster mutual understanding of different methods of health and educational service delivery; and to explore opportunities for reducing health inequalities in schools and local communities.
By using food as a catalyst, the project stimulated interest in healthier lifestyles through professional, social and cultural exchanges. Increased community involvement in local projects helped further community development to improve the lives of children and parents in local areas. The project also increased access for the children, their families and the wider community to a range of cultural activities focused on the enjoyment of healthy eating.
As part of the project, there were annual cross border professional exchange visits and two one-day Festivals of Food, Culture and Sports – one in Pas-de-Calais and one in Kent – bringing together schoolchildren, members of the community, health professionals, head teachers and teachers involved in the Bien-être project, as well as other health and education professionals from the area.
Here are some of the services we currently provide…
If you would like to know more, or think you may want something a little different, please get in touch. We pride ourselves on being able to offer every customer a service that is tailor-made for them…
- Opportunities for learning and sharing good practice across Europe through workshops, conferences, study tours and exchanges
- Practical examples of different ways of working in other countries
- Promotion of local health and social care providers to key decision-makers and institutions in the European Union
- Advice and support to develop, implement and manage EU-funded projects
- Regular briefing papers on specific health and social care topics
- Advice on EU policy developments
- Workforce development through deployment to EU countries and involvement in EU learning programmes